For this weekend, Jen & I are trying a slightly different schedule. Both of us get to the PICU early in the morning to get him up and going. The mornings seem to be the critical times so it is important that both of us be there to get him started in the right direction.
Once he is awake and we have finished the VEST and the Cough Machine one of us will leave to go home to do some of the things that have been pushed to the back burner for the last 2 weeks…really fun stuff like laundry, opening the mail and paying the bills! We are also trying to rest and relax a little since both of us are pretty burned out at this point. Today was Jen’s day to leave and Sunday will be mine.
Nate was in a pretty good mood for most of the day. His chest x-ray was slightly better than Friday’s x-ray so that is good news. The bad news is that his nose is extremely congested / stuffy / blocked with scabs of dried blood. Yesterday he sounds so stuffy and when Dr. Carey looked up his nose this morning, we understood why. We are doing saline breathing treatments every 2 hours in addition to his regular treatments in hope that they will moisten and loosen the blockage. We’ll talk to Dr. Carey tomorrow about a plan on how to treat this situation plus prevent this from happening again.
David Rieck stopped by to see Nate and bring us some snacks from Wild Oats Market. He got to see Nate as we did the Cough Machine and as he got ready to take his nap. We planned to do a little male bonding during the Ohio State vs. Michigan game but Nate fell asleep about 15 minutes before kickoff. It turned into a good nap of about 3 hours but he was really cranky when he woke up! We did the VEST and Cough Machine to help clear his lungs and he was much happier after he got to watch SpongeBob. I came home about 6:15PM and Jen stayed to get him squared away for the night.
Thanks for your prayers and Get Well Soon wishes!!
Once he is awake and we have finished the VEST and the Cough Machine one of us will leave to go home to do some of the things that have been pushed to the back burner for the last 2 weeks…really fun stuff like laundry, opening the mail and paying the bills! We are also trying to rest and relax a little since both of us are pretty burned out at this point. Today was Jen’s day to leave and Sunday will be mine.
Nate was in a pretty good mood for most of the day. His chest x-ray was slightly better than Friday’s x-ray so that is good news. The bad news is that his nose is extremely congested / stuffy / blocked with scabs of dried blood. Yesterday he sounds so stuffy and when Dr. Carey looked up his nose this morning, we understood why. We are doing saline breathing treatments every 2 hours in addition to his regular treatments in hope that they will moisten and loosen the blockage. We’ll talk to Dr. Carey tomorrow about a plan on how to treat this situation plus prevent this from happening again.
David Rieck stopped by to see Nate and bring us some snacks from Wild Oats Market. He got to see Nate as we did the Cough Machine and as he got ready to take his nap. We planned to do a little male bonding during the Ohio State vs. Michigan game but Nate fell asleep about 15 minutes before kickoff. It turned into a good nap of about 3 hours but he was really cranky when he woke up! We did the VEST and Cough Machine to help clear his lungs and he was much happier after he got to watch SpongeBob. I came home about 6:15PM and Jen stayed to get him squared away for the night.
Thanks for your prayers and Get Well Soon wishes!!
2 comments:
Continued prayers for you all. It takes time,(which I hate)but he will get better. Praying that they can figure out the deal with Nathan's nose. Jana and Kyle Gundy, sma type 1, 2 yrs old
Dear Jen and Trey, you don't know me but I work with a family member of yours and she told me about your story and your amazing son (and obviously forwarded this blog). I can only say that you two are probably the most amazing and strong parents I have ever come across and your son seems like an angel sent from God. His courage, strength and spirit just seems to be such a message to all of what we should strive for. Each challenge has its meaning and your son (and you) are an inspiration to all that when the rest of us complain about mundane things we really just need to stop and think about people like Nate. Thank you for sharing this, God Bless and I hope you didn't mind a stranger (mother of an 8 month and a 2 year old) posting a comment about your beautiful family.
All my best,
Maggie Lang
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