Saturday, May 01, 2010
The morning I was in labor, August 3, 2003, on the way to the hospital, there was a big rainbow in the sky. I haven't seen a rainbow since. This morning, I was sitting outside and it started to sprinkle, but yet was a little bit sunny outside. I thought, will there be a rainbow. I kept looking. A few minutes later, it appeared. I called Trey and Owen outside and we just stared at it. We said hello to Nathan and thanked him and God for the sign that all is well. Within a few minutes, the rain was gone and so was the rainbow. What a special moment that was. I pray as time goes by, Nate and God will continue to send us signs like this to help with healing.
Friday, April 30, 2010
Viewing on Sunday, May 2, 2010 from 12:00 Noon - 9:00 PM at Floral Haven, 6500 S. 129th E. Ave., Broken Arrow, OK 74012, 918-252-2518 (www.floralhaven.com). Memorial Ceremony followed by Reception on Monday, May 3, 2010 at 11:00 AM at Mason Chapel - Asbury United Methodist Church, 6767 S. Mingo Road, Tulsa, OK 74133-3309, 918-492-1771 (www.asburytulsa.com).
In lieu of flowers, please make donations in Nathan's Memory to Families of Spinal Muscular Atrophy - FSMA Donations, 925 Busse Road, Elk Grove Village, IL 60007 or https://www.fsma.org/Fundraising/Donate
Thursday, April 29, 2010
It is with profound sadness that we let everyone know that Nathan earned his Angel Wings Wednesday night at 9:45PM. He passed away with Jen & I at his side talking to him, letting him know that he had fought a valiant battle.
We are extremely thankful for all the thoughts, prayers and support that all of you have given Nate and our family. Please know that he is running around in Heaven with all of the other SMA Angels enjoying all the things that they could not do here with us.
Trey & Jen
Wednesday, April 28, 2010
Tuesday, April 27, 2010
It's not an ear infection, doesn't seem to be allergy related, possibily bronchitis (although his lungs sound clear). Started him on a Zpack today. Mobile x-ray coming to do chest x-ray this afternoon. Nasal swabs were taken to check for bacterial or viral infection. If it's viral, obviously we just have to wait it out - bacterial, and hopefully the z-pack will take care of it. He is having these coughing spasms that last about an hour. Non-stop coughing. It comes and goes at random times of the day. It just wears him out. We use the cough assist and get some stuff out, but his coughing spasms continue. Sometimes, he needs supplemental O2 and his heart rate is way high, other times, his saturations remain normal during these episodes. He's never had anything like this before. I'm actually hoping it's bacterial form of bronchitis, so we will have an answer and the z-pack will work!!! It's so FRUSTRATING!
Prayers would be appreciated! Thank you!
Monday, April 26, 2010
Nate's allergies have flared up again and he has had a REALLY ROUGH day...tons of secretions, coughing, gagging, choking, etc. It was a repeat of what Easter Sunday was like except that his heart rate has been lower and he's not running a high fever.
We changed to a new antihistamine this morning so hopefully we'll start to see results soon. Until then, a few extra prayers would be appreciated!
Sunday, April 25, 2010
NATE PLAYS BASEBALL! He's in Challenger Baseball League, on a team called the "Jets". All kids have some kind of disability. Nate's team seems to have the most kids in wheelchairs. He had his first game yesterday morning It was a so fun! We met a lot of nice people and Nate enjoyed "throwing" the ball around and batting. So special! We'll probably post pics every week from each game. It was hard to get very good pics or a good video this time because Trey was dealing with Owen (typical 2 1/2 year old all over the place!) and I was helping Nate throw and bat.
Not knowing what to expect, since this was his first time to play, we learned a couple of things. Owen needs someone else to watch him, so Trey and I can both be with Nate. Trey missed out on a lot because he was chasing Owen around the whole time! Nate needs to be in his power chair, not his manual chair - it was very heavy and hard to move on the grass and dirt. Plus, he will love driving around the field! Next time, he will be in full uniform! Too cute! Hopefully, we can get some videos and pics of him throwing the ball with his teammates, batting and rounding the bases.