Things have been up and down to say the least. We think Nate has been struggling with a cold, sinuses or allergies the past week. He has moments of really struggling, and then he'll be fine. Luckily, nothing has been serious. He's been running a low grade temp, lots of thick secretions and times of desatting. He's also been sleeping more than usual. So, we've been taking it easy. We did take him out Saturday after we made sure he was doing okay. It was a very important outing, because it was Owen's baptism! Very small private ceremony with just family. It was very special and touching. And it meant the world that Nathan could go and be there with us. After the baptism, we all came back to the house for lunch. Nathan had an episode as we were getting him out of his kid kart. It was a scary one, but luckily he recovered quickly and took a long nap and was fine the rest of the afternoon. Owen loved all of the attention and behaved all day! Unfortunately, our pictures didn't turn out too good. It was pretty dark in the sanctuary. I posted two of the better ones. One is with the Pastor who did the ceremony. He also did Nate's private baptism and he hadn't seen Nate since then, when he was 6 months old (we had just gotten Nate's diagnosis and it was a very emotional time). I was happy for Pastor Mason to see Nathan now - 5 years old and going strong!
Jennifer