I know it's been awhile since we've posted, but it's been a long week. Our main night nurse, Jennie, took vacation (which she definitely deserved - she's the best and we don't know what we'd do without her!!!), so we had some nights of no nursing and some of new nurses filling in. Well, I'd much rather do it ourselves than have an incompetent nurse taking care of our Nathan! I won't bore everyone with all the details, but it was an exhausting week for both Trey and I and more so for Nathan. We definitely appreciate and value Miss Jennie even more than we did, if that is possible!
Since I last posted, we've been busy with our boys! Nate has been practicing driving his power chair at the school gym and doing great! He's doing much better and it's nice to have a big place for him to drive and not having to worry about the weather. After this week, we will go twice a week in July and then when school starts again, we'll probably go back to once a week.
We had Uncle Papa, Aunt Jenny, Michelle and her two kids, Charlie and Evelyn, over for pizza and play time, which was a good time had by all. Nate and Owen have been in the pool some, but the weather has been crazy for this time a year. Like every third day, we have sun, then rain, storms, and more rain! We've been putting the portable lift to good use and I've enjoyed holding Nathan in the living room and I know he loves it also. It's so nice to be close to him and love on him! Trey took off last Thursday and Friday and we took Nate to the Air and Space Museum, which also has a planetarium. It was really neat and he enjoyed it. (Trey might have enjoyed it more since he got to sit in the cockpit of a military plane!).
Last weekend, Aunt Amy (Trey's sister), came for a visit and we really enjoyed her company. She helped a lot with the boys! We had a fun filled weekend!
We're looking forward to the 4th and shooting off fireworks with Nathan. We will be going to the neighborhood parade again this year and decorating the boys strollers. Uncle Jeff and Aunt Bradette will be joining us. I'll be sure to post pics!
Also, Trey and I celebrated our 7th wedding anniversary on June 23rd. We actually were able to go OUT! Nurse Jennie came early and took care of Nathan and we had a sitter for Owen. It had been since last year's annivesary that we had been out to dinner. Sad, I know, but that's the way it is. Luckily, Trey and I are on the same page and Nathan's care comes first. Usually, your marriage is first, but our situation is different and we sometimes have to put our marriage and each other on the back burner for the sake of Nathan. We don't have a "typical" marriage, but the bond we share, and all that we have gone through has made us closer. Sure, we would love to be able to just hire sitters, go out to eat, go on vacations, etc., etc., but having a child as special as Nathan and being able to share that experience together is so worth more than any dinner out or vacation on the beach. All the sacrifices have been worth it, when we see how well Nate is doing and how happy he is. I'm so blessed that I married a man so strong and so devoted to us. And we Thank God that he gave us both the strength to rise to the occasion and accept what life has given us with open arms! I love you Trey!
Jennifer
p.s. Enjoy the pics of Aunt Amy's visit!
Nate and his nurses, Ollie & Jennie
The boys with Mom, Dad, Uncle Jeff & Aunt Bradette
The boys and their entourage...Mom, Dad, Uncle Jeff, Aunt Bradette, Ollie, Jennie, Tracy, Cassidy and Jake.
Nate after the parade
Owen after the parade
