Tuesday, October 18, 2011

Notes from a Dragon Mom

Please click on the link below to read a very moving and accurate New York Times article on what it is like to parent a child with a terminal genetic disorder:

Another SMA family posted it on their daughter's blog (http://scarlettshope.blogspot.com/) and I wanted to share it here.


Sunday, October 16, 2011

runNYC4Nate Update - 8/16/11

The final countdown has begun...

Three weeks from today, we'll be in NYC and I will be running the marathon!

A HUGE THANK YOU to all of our family and friends who have donated to Families of SMA! As of today, you have generously donated $8,010 in memory of Nate. I cannot begin to tell you how much this means to me & Jennifer...we truly appreciate your thoughtfulness and support!

I completed my last long run today (20 miles) and now begin my taper in preparation for the 26.2 miles on Sunday, November 6. I also look forward to running in cooler weather as it was in the upper 80's today in Tulsa!

I received my Bib Number last week and I am way at the back of the pack! I am #64-491 and I start running in the final wave at 10:40AM. If you are interested in tracking my progress, here is the website for the marathon and just follow the instructions under "Runner Tracking": http://www.ingnycmarathon.org/

Once again, THANK YOU for your donations and support! Please check back here on the evening of Sunday, November 6, to see how I did.