Wednesday, January 20, 2010

Chase Community Giving Contest

Help raise money for SMA research!!!
PLEASE go to and follow the instructions to vote for the Gwendolyn Strong Foundation on the Chase Community Giving Contest. The Top Prize is $1 MILLION DOLLARS and the ENTIRE amount will be donated to SMA research!
The deadline is Friday, January 22nd, so don't delay!

Monday, January 18, 2010

Jinxed it!

Too much talk about how well Nate has been doing! Yesterday, out of nowhere, he got a mucous plug. Luckily, I was standing right there and noticed him choking right away. He turned blue and wasn't making any sounds. We were able to turn him quickly, cough him with the cough assist, lots of O2 and had the ambu bag ready to go. Since we were able to catch it so early, he recovered quickly. THANK YOU LORD! So, I guess this was a "wake up call" from Nate and God to keep us on our toes, not get too comfortable, and remember how fragile our little boy is. How can a boy be so fragile, but yet so "strong"?
p.s. He's doing just fine now, just one of those things that happens with SMA kiddos. Plugs. HATE THEM! I think they are more dangerous than an actual illness.

Sunday, January 17, 2010

Back to "Normal" after the holidays

Nate is doing so well - I'm almost afraid to keep talking about how well he's doing! Don't want to jinx it! He's back to driving his chair at school, the mall, church and doing great! He missed a couple of weeks of driving because of the weather, but it didn't seem to slow him down. His favorite was driving at the mall. I was so proud of him, since he'd never really driven in a place like that - mostly in gyms, outside where there is a lot of room. He showed me he definitely knows how to drive that chair. Except he did run into two people :) - no harm done!

He's loving school and doing better with his eye gaze. I think he prefers to use his voice sometimes more than the eye gaze. He likes to hear himself "talk", although we're not sure quite what he's saying. He has an appointment in a couple of weeks to get his eyes checked. We want to make sure that's not a problem and affecting his use of the eye gaze.

Owen and Nate are getting closer by the day. They have a lot of fun together. Owen is so sweet and helpful (except during his terrible two tantrums, which are coming more often these days)!
Since the holidays, I've been bad about picture taking. I'll try to get some posted soon.

Prayers to all the sick SMA kiddos, and the people of Haiti!

Thanks for checking in!