On another note, over the weekend, we started getting Nathan in his ceiling lift to transfer him to the bath tub. He tolerated it very well and it was MUCH easier on me and on him also. He is to the point that he's so big and tall, we really have no choice but to start using the lift. We don't want to risk injury to Nate and are trying to save our backs!
We will update again if anything changes or after we visit Dr. Carey on Tuesday.