Saturday, August 04, 2007
What a blessing - 4 years with our Nate! He had such a great birthday yesterday. He loved the Aquarium and seemed to enjoy it much more than the previous visits. He seems to be at the perfect age to really take it all in and was much more interested in all the fish and exhibits. He also enjoyed opening presents more this year and tasting his homemade cake. He was so into it! It was the perfect day.
With each birthday Nathan has, we celebrate. We celebrate him beating the odds and we admire his diligent fight against the devastating disorder of SMA. Throughout the year, we enjoy every single day with Nathan. We realize how precious Life is and realize what a special and strong person Nathan is. Nathan is such a happy boy, which makes us happy. Sure, Nathan is different and has a horrible disorder, but we don't focus on that. We enjoy Life & Nathan and the fact that he has SMA is secondary.
The pictures will be coming. We have so many good ones to share!!!
Thanks for checking in on Nate and for all the birthday wishes!
Jen & Trey
Tuesday, July 31, 2007
One of the great things about having a hospital bed for Nate is the ability to raise, lower, tilt and adjust it to suit Nate's needs. During his doctor's appointment this afternoon, we talked about putting him in different positions to see if some worked better for him in regards to his breathing. While he is in his stander, he is able to be off the BiPAP for longer periods of time than when he is laying down.
So tonight, we raised the head of the bed way up so we could get him in a reclined sitting position without the BiPAP for a while. He did really well and was off the BiPAP for about 15 minutes...