Like all SMA Type I kids, Nate has EXTREMELY limited movement with his arms and legs. The only time he can really freely move his arms & legs is when gravity is taken out of the equation (when he is in his slings or in water).
We have taken an aggressive approach with physical therapy and are convinced that this has helped him develop all of the movements you will see in this video and future videos as well. Every evening about 7PM, we put him in his slings to kick and turn on music for him to listen to. It is one of his favorite things to do (along with being in the water) because he can MOVE and he loves it! Because of the exercise he gets everyday either in the slings or in the water, he has developed some movement when he is sitting in his chair or laying down. He will move his legs back & forth, roll his arms and move his hands around. We shot this video of him tonight and we'll post others of him in the pool and driving his Power Chair.
Click on the link below to see Nate on You Tube. The video is just over 7 minutes long and and we hope you enjoy it...
Click on "Watch in High Quality" to get a better video and turn the volume up so you can hear all of Nate's cute sounds!
Jen and Trey