This pic really shows off his two front teeth! To get a bigger view, just click on the picture to enlarge.
Sunday, January 20, 2008
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My name is Nathan Russell and I am forever 6 years old. In December 2003, at the age of 5 months, I was diagnosed with a neuromuscular genetic disorder called Spinal Muscular Atrophy - Type 1 (SMA) and fought as hard as I could until April 28, 2010. My parents created this site so that my family and friends can check up on me and my little brother, Owen.
1 comment:
Hi Jennifer. I am Jeri Phillips' sister, Janna Journeycake. I found your blog site from Jeri's. Anyway, I just wanted to let you know how much I appreciate your site. I am a pediatrician who subspecializes in hematology in Dallas, and I recently met a patient with a family history of SMA. Pretty strange to hear about your medical experience. I trained in residency at St. Francis and worked with Dr Carey and Dr Cyrus (blast from my past!).
You have a beautiful family. Would love to hear from you. My email is mdjcake@tx.rr.com.
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