Tuesday, October 18, 2011

Notes from a Dragon Mom

Please click on the link below to read a very moving and accurate New York Times article on what it is like to parent a child with a terminal genetic disorder:

Another SMA family posted it on their daughter's blog (http://scarlettshope.blogspot.com/) and I wanted to share it here.


1 comment:

Lucy and Ethel said...

LOVE this - how true it is....

Thank you for sharing!!!