Notes from a Dragon Mom

Please click on the link below to read a very moving and accurate New York Times article on what it is like to parent a child with a terminal genetic disorder:

http://www.nytimes.com/2011/10/16/opinion/sunday/notes-from-a-dragon-mom.html?_r=3&src=tp&smid=fb-share

Another SMA family posted it on their daughter's blog (http://scarlettshope.blogspot.com/) and I wanted to share it here.

Thanks,

Trey