We have donated a lot of Nate's equipment and supplies to different charities. But some of the equipment we really wanted to know where it was going to help someone like Nate. Our friends, The Gundy's (who have a son, Kyle, with SMA Type 1 as well), have a local charity that donates equipment to needy families with SMA or conditions similar to SMA. We gave them the Vest and Cough Assist, along with a few other items. The vest and cough assist were very crucial in Nate's care and are wonderful medical devices. Both of those have been given to families that needed them. I received a note from a mom, Jennifer, whose son Zeke, has Cystic Fibrosis. They were the ones who got the vest. It has already helped Zeke so much since they have had it and has helped make his life easier. That makes us so happy! :)
Above is a picture of Kyle Gundy enjoying Nate's old swing! He's almost too big for it, but at least he will get to enjoy it for a short time. Then I'm sure they will pass it on to another family whose child would love it as well. This would all make Nate very happy to know others are benefitting from his old equipment and enjoying his swing!!! :)
Yesterday Owen and I went to a birthday celebration for Kyle at Chuck E Cheese. He turned 6 years old! Yeah Kyle! It was good to see them and be able to enjoy Kyle's special day with him. The only hard part was when we pulled up and Owen saw Kyle in his wheelchair Owen yelled "Nate!". I said no, that's Kyle, but he's a lot like Nate. Then he seemed fine and had a great time. Happy birthday sweet Kyle!
1 comment:
I have a son who hs SMA type I and could use Nathan's old things.
Our e-mail is codyfightssma@yahoo.com
thank you,
Mary Jeff and Cody
www.caringbridge.org/visit/codyadam
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