Monday, June 01, 2009
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My name is Nathan Russell and I am forever 6 years old. In December 2003, at the age of 5 months, I was diagnosed with a neuromuscular genetic disorder called Spinal Muscular Atrophy - Type 1 (SMA) and fought as hard as I could until April 28, 2010. My parents created this site so that my family and friends can check up on me and my little brother, Owen.
1 comment:
Someday Owen will be so glad you cut his head off in this picture!
I laugh every time I look at it.
Love you all,
Aunt Sue
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