Friday, February 12, 2010

Nate's Valentine's Party at School








What fun! Nate went to school yesterday for about an hour while they passed out Valentine's and did other Valentine's Day activities. He had the best time! He was Mr. Popular (especially with the little girls) :) ! Enjoy the cute pics!
On another note, Owen woke up sick this morning. He has a dr. appt at 2:00. Hope it's nothing serious, just a yucky cold, but want to make sure before the weekend (and Trey goes out of town for a couple of days next week!). Please pray that Nate doesn't catch this and Owen gets over it quickly! Keeping them separated is TOUGH!

Thanks for checking in!
Jennifer

Saturday, February 06, 2010

Hangin' out in the dryer

I guess this is how Owen helps Jen empty the dryer & fold the clothes!


Friday, February 05, 2010

Nate Has Eye Glasses!!!!




Not that we would ever want him to have bad eyes, but HE LOOKS SO CUTE, SO MUCH OLDER AND SO DISTINGUISHED :) !!!!

When Nate has been communicating with his eye gaze, he would go to "my eyes are bothering me" a lot. I thought it was probably dry eyes or his eyes were getting tired from using the eye gaze or that it was hard on his eyes. Denise, one of his speech therapists, suggested we might take him to the eye dr. just in case to make sure his vision was okay. I really wouldn't have thought about this (don't know why, just thought a six year old would have healthy eyes ????). Turns out, Nate was right on and so was Denise. He is near-sighted and has fairly bad eye sight. Poor thing! So now it's like he's seeing everything for the first time! CLEARLY! We are so excited and Nate is too. He has been taking it all in today and you can really tell a difference!

Saturday, January 30, 2010

Snow, snow, snow


We had another big snow storm here and the boys have loved it! It's affected our nursing situation, which isn't fun, but otherwise, everything is great. I built another snowman for Nate outside his window and we been out two days in a row to play (maybe tomorrow too). Nate loves being outside in it and watching Owen sled and roll around. He also likes throwing snowballs at him! Good times!

Tuesday, January 26, 2010

Update

Thanks to those of you who voted for the Gwendolyn Strong Foundation. They came in 6th place and won $100,000 for research to find a cure for SMA!!!

Nate has been doing great. Only those two incidences (the plug I mentioned earlier and one morning when he struggled quite a bit). I've been keeping a close eye on him and we've been taking it easy to make sure all is well and he's not getting sick. So far, so good!!

Wednesday, January 20, 2010

Chase Community Giving Contest

Help raise money for SMA research!!!
PLEASE go to www.gwendolynstrong.com and follow the instructions to vote for the Gwendolyn Strong Foundation on the Chase Community Giving Contest. The Top Prize is $1 MILLION DOLLARS and the ENTIRE amount will be donated to SMA research!
The deadline is Friday, January 22nd, so don't delay!

Monday, January 18, 2010

Jinxed it!

Too much talk about how well Nate has been doing! Yesterday, out of nowhere, he got a mucous plug. Luckily, I was standing right there and noticed him choking right away. He turned blue and wasn't making any sounds. We were able to turn him quickly, cough him with the cough assist, lots of O2 and had the ambu bag ready to go. Since we were able to catch it so early, he recovered quickly. THANK YOU LORD! So, I guess this was a "wake up call" from Nate and God to keep us on our toes, not get too comfortable, and remember how fragile our little boy is. How can a boy be so fragile, but yet so "strong"?
Jennifer
p.s. He's doing just fine now, just one of those things that happens with SMA kiddos. Plugs. HATE THEM! I think they are more dangerous than an actual illness.

Sunday, January 17, 2010

Back to "Normal" after the holidays

Nate is doing so well - I'm almost afraid to keep talking about how well he's doing! Don't want to jinx it! He's back to driving his chair at school, the mall, church and doing great! He missed a couple of weeks of driving because of the weather, but it didn't seem to slow him down. His favorite was driving at the mall. I was so proud of him, since he'd never really driven in a place like that - mostly in gyms, outside where there is a lot of room. He showed me he definitely knows how to drive that chair. Except he did run into two people :) - no harm done!

He's loving school and doing better with his eye gaze. I think he prefers to use his voice sometimes more than the eye gaze. He likes to hear himself "talk", although we're not sure quite what he's saying. He has an appointment in a couple of weeks to get his eyes checked. We want to make sure that's not a problem and affecting his use of the eye gaze.

Owen and Nate are getting closer by the day. They have a lot of fun together. Owen is so sweet and helpful (except during his terrible two tantrums, which are coming more often these days)!
Since the holidays, I've been bad about picture taking. I'll try to get some posted soon.

Prayers to all the sick SMA kiddos, and the people of Haiti!

Thanks for checking in!
Jennifer

Saturday, January 02, 2010

Christmas cards

For anybody wondering, we didn't send out Christmas cards this year. Too busy, takes a lot of preparation, yadda yadda... Just so you know, and don't think we didn't send you one! Next year HOPEFULLY! Now that the season is over, I wish I had done them, but oh well, no big deal right?!?!

Friday, January 01, 2010

Nate and Owen Snowball "Fight" Youtube Videos

Here's the first video of Owen throwing snow at Nate

http://www.youtube.com/watch?v=oXkSzequtlY

And then the second video of Nate getting back at Owen and throwing snowballs at him :)

http://www.youtube.com/watch?v=2mn5YS9ClL8

Christmas 2009

We had a great Christmas here, despite the "blizzard"! A true blizzard - it was unbelievable! But, everyone made it over Christmas Day and Nana and Wayne made it in from Dallas. The boys loved their presents and had a blast playing in the snow (after the blizzard passed of course). Owen's favorite toys were his train and vacuum. Nate is enjoying his new movies, books, clothes and music.

I hope everyone had a Merry Christmas! HAPPY NEW YEAR everybody! Praying for more progress on a cure for SMA and for all the kiddos suffering from this disorder.

Nate's Snowman Outside His Window







Christmas Snow 2009











Christmas Snow 2009











More Presents Christmas 2009





Boys Opening Presents Christmas 2009









The Boys Opening Presents Christmas 2009








Silly Owen




Monday, December 28, 2009

Christmas 2009

I have SO many pictures to post, but unfortunately our internet/computer has been acting up. I will keep trying! We had a great Christmas and I will post more soon.

Monday, December 21, 2009

Christmas with Pop and Grandma Annie







Our Christmas celebration started early! Pop and Grandma Annie came in last weekend and the boys were thrilled to get to open some presents! The boys did great and Nate even showed off driving his power chair for them. Fun, Fun!

Now, looking forward to Christmas Day with Nana, Grandpa Wayne, Uncle Jeff, Aunt "B", and Gammy!