Tuesday, May 04, 2010

Remembering Nate

Last night, I really wanted and needed to see Nate before finally going to bed. As most of you know, we have posted numerous videos of him & Owen on YouTube over the last couple of years. This is the video that I watched. It was taken on a Sunday morning (March 22, 2009) as we were getting Nate squared away. We were getting ready to put his BiPAP mask back on but he was doing so well, we decided to keep it off for a while and just let him be. What we got was an amazing video of sounds, expressions and head movements. It is the essence of Nate...this is the Nate that I will always remember and cherish!

http://youtube.com/watch?v=qHgshwjhcUE

Our YouTube channel is "rer3family" if you want to see all of the videos.

Trey

Sunday, May 02, 2010

Another remarkable sign from Nate and God

Yesterday, I went to have my nails done. I haven't done this in years. First I had my pedicure and was scheduled to have a manicure afterwards, but I needed to get back home to greet family from out of town. Decided I would come back later for my manicure. I was sitting in a chair waiting to have my nails done, next to two ladies talking. Most of their conversation was about God and Church. I had a feeling about the lady next to me. I can't explain it, but I wanted to tell her about Nate and ask her to pray for me and my family. I was included in some of their conversation, just talking about her Yorkie she had with her and nail stuff. When we got back to more talk about church, I asked where she attended. She said First Baptist Downtown. I told her my best friend since 2nd grade (Michelle Bauer Folks) went there (thinking no way would they know each other - it's a HUGE church), she said Oh, yes, I know Michelle, John, Charlie and Evelyn. We worked together at the church. She said she would tell Michelle she met me. I then told her that Michelle would probably tell her something else about me - the story of Nate. I then poured my heart out, all about Nate, his life, his passing - all to a stranger - crying and crying. She listended. Then she said, "You know what, I've been praying for you and your family already". Michelle had put us on a prayer list and the lady already knew about us and Nate's passing. Her name is Gayle Crist. She is a Stephen's Minister at First Baptist, Tulsa. We continued to talk and cry. Then as she left, she hugged and kissed me and told me she will continue to pray, just as she had been. Unbelieveable. Thank you again God and Nathan.

Saturday, May 01, 2010

Nathan's Rainbow

The morning I was in labor, August 3, 2003, on the way to the hospital, there was a big rainbow in the sky. I haven't seen a rainbow since. This morning, I was sitting outside and it started to sprinkle, but yet was a little bit sunny outside. I thought, will there be a rainbow. I kept looking. A few minutes later, it appeared. I called Trey and Owen outside and we just stared at it. We said hello to Nathan and thanked him and God for the sign that all is well. Within a few minutes, the rain was gone and so was the rainbow. What a special moment that was. I pray as time goes by, Nate and God will continue to send us signs like this to help with healing.

Friday, April 30, 2010

Nathan's Arrangements

Viewing on Sunday, May 2, 2010 from 12:00 Noon - 9:00 PM at Floral Haven, 6500 S. 129th E. Ave., Broken Arrow, OK 74012, 918-252-2518 (www.floralhaven.com). Memorial Ceremony followed by Reception on Monday, May 3, 2010 at 11:00 AM at Mason Chapel - Asbury United Methodist Church, 6767 S. Mingo Road, Tulsa, OK 74133-3309, 918-492-1771 (www.asburytulsa.com).

In lieu of flowers, please make donations in Nathan's Memory to Families of Spinal Muscular Atrophy - FSMA Donations, 925 Busse Road, Elk Grove Village, IL 60007 or https://www.fsma.org/Fundraising/Donate

Thursday, April 29, 2010

Nathan is at Peace

It is with profound sadness that we let everyone know that Nathan earned his Angel Wings Wednesday night at 9:45PM. He passed away with Jen & I at his side talking to him, letting him know that he had fought a valiant battle.
We are extremely thankful for all the thoughts, prayers and support that all of you have given Nate and our family. Please know that he is running around in Heaven with all of the other SMA Angels enjoying all the things that they could not do here with us.
Trey & Jen

Wednesday, April 28, 2010

Nathan to the hospital

HORRIBLE NIGHT!...Nate's worn out so we are transporting him to the PICU at St. Francis. Jen & Nate just left in the ambulance and I right behind them...will update when possible...NEED EXTRA PRAYERS!!!!

Tuesday, April 27, 2010

Dr. also not sure what's going on!

It's not an ear infection, doesn't seem to be allergy related, possibily bronchitis (although his lungs sound clear). Started him on a Zpack today. Mobile x-ray coming to do chest x-ray this afternoon. Nasal swabs were taken to check for bacterial or viral infection. If it's viral, obviously we just have to wait it out - bacterial, and hopefully the z-pack will take care of it. He is having these coughing spasms that last about an hour. Non-stop coughing. It comes and goes at random times of the day. It just wears him out. We use the cough assist and get some stuff out, but his coughing spasms continue. Sometimes, he needs supplemental O2 and his heart rate is way high, other times, his saturations remain normal during these episodes. He's never had anything like this before. I'm actually hoping it's bacterial form of bronchitis, so we will have an answer and the z-pack will work!!! It's so FRUSTRATING!

Prayers would be appreciated! Thank you!
Jennifer

To this dr. this morning

Nate had a really rough night. Don't know what's going on with him. He's on so many different medicines and nothing seems to be working. Dr. appt 10:00. Will update later.

Monday, April 26, 2010

Extra Prayers

Nate's allergies have flared up again and he has had a REALLY ROUGH day...tons of secretions, coughing, gagging, choking, etc. It was a repeat of what Easter Sunday was like except that his heart rate has been lower and he's not running a high fever.
We changed to a new antihistamine this morning so hopefully we'll start to see results soon. Until then, a few extra prayers would be appreciated!
Thanks,
Trey

Sunday, April 25, 2010

PLAY BALL!












NATE PLAYS BASEBALL! He's in Challenger Baseball League, on a team called the "Jets". All kids have some kind of disability. Nate's team seems to have the most kids in wheelchairs. He had his first game yesterday morning It was a so fun! We met a lot of nice people and Nate enjoyed "throwing" the ball around and batting. So special! We'll probably post pics every week from each game. It was hard to get very good pics or a good video this time because Trey was dealing with Owen (typical 2 1/2 year old all over the place!) and I was helping Nate throw and bat.
Not knowing what to expect, since this was his first time to play, we learned a couple of things. Owen needs someone else to watch him, so Trey and I can both be with Nate. Trey missed out on a lot because he was chasing Owen around the whole time! Nate needs to be in his power chair, not his manual chair - it was very heavy and hard to move on the grass and dirt. Plus, he will love driving around the field! Next time, he will be in full uniform! Too cute! Hopefully, we can get some videos and pics of him throwing the ball with his teammates, batting and rounding the bases.

Sunday, April 18, 2010

Nate Off His Bipap Today



He's lookin' good! And it's a great sign that he's a lot better when he can be off his "pappy"!

Owen Conked Out!


He just started using a pillow. Before you know it, he'll be in his big bed and the crib will be history. He is getting big for the crib, but it's nice to have him "confined" for now :) !

Candid photos

Nate and the Fish Hat from his teacher
It's for you...
Owen makes a fashion statement...

Brothers...enough said...


Owen in the Rain






Posters from his classmates

Last weekend, Nate's teacher dropped off some posters that his classmates had made for him. He usually sees his classmates a couple of times each week (either in the classroom or while driving his power chair in the gym). Since he did not go to school at all the week after Easter, they started asking about him and the teacher told them that he was sick...so the made him these "Get Well" posters...





Easter Weekend Pictures #2

Even though he wasn't feeling well, we got a couple of good pictures of him on Easter


The finishing touches on the cupcakes...




Easter Weekend Pictures #1

Bring on Easter Lunch!
Ready for the Hunt!





Friday, April 16, 2010

Doing Better

Nate's doing much better, but still not 100%. We've obviously stayed in all week, although he has had school here at the house. We'll continue to let him rest, recover, and get better throughout the rainy weekend, and hopefully next week, he'll be back to 100% and out and about at school, and possibly enjoying some nice weather outside!

Monday, April 12, 2010

It's an Ear Infection

Went to the dr. today. Found out Nate has an ear infection, most likely spurred on by all of his allergies. So, he added an antibiotic, which he will start today. I'm so glad we figured out what was going on and have all the meds to get him better! No hospital - yippee!

Sunday, April 11, 2010

A long night followed by an OK Sunday...

Last night Nate fell asleep around 9:30PM but started having problems with his secretions about 12:30AM or so. Jen got up and suctioned him off & on until a little before 3AM. At that time, I got back up so she could go back to bed. He finally seemed to get them under control about 3:30AM or so and finally feel back asleep after being changed at 4:15AM.
He slept until 8:30AM and did NOT appreciate us waking him up! The morning was good and we were able to give him another quick bath. We also were able to get him up in his wheelchair for about 30 minutes so he got to watch SpongeBob on the big screen in the den.
This evening was OK...still has a lot of secretions and they can be pretty thick at times. The good news is that his lungs appear to be clear as we can hear good air movement in all lobes when we listen to him. The other good news for tonight is that Katie can cover the overnight shift. Jen & I are exhausted so we hope that he has another good night with her and we can get a little rest.
Thanks again for your prayers & support...please keep them coming!